Promoting co-operation between research and patient communities to beat RMS.   Read more …

Welcome to our Rhabdomyosarcoma community

We call this our ‘1000 faces of RMS’ because our ambition is to gain support from 1000 people with Rhabdomyosarcoma (RMS) for the International Sarcoma Kindred Study and to promote research and find a cure for RMS. If we get anywhere near this level of support, and it will take a long time, then we together will have made a massive step forwards in supporting research into this disease. Please join our Facebook group to see how this project is progressing and meet other members.

The medical and research communities are working to  learn more about rhabdomyosarcoma, ways to screen for it, detect it early, prevent it, provide more effective treatments, to make treatments easier for people diagnosed with this disease, and how best to care for them. Science has delivered great progress in recent years with huge improvements in the treatment of a number of cancers such as breast cancer.

There is now growing confidence that we can make the same progress with more rare cancers like  RMS and that at some point in the future it will become a manageable disease. Our aim is to support those diagnosed and to support these professionals in their research into RMS.

Rhabdomyosarcoma (RMS)

RMS is a rare and aggressive form of soft tissue cancer.  RMS has particularly high incidence amongst infant and adolescent cancer patients.  There is evidence to suggest that sarcomas have a disproportionately high genetic basis, unlike cancers that are clearly very largely due to environmental factors, like lung cancer and skin cancers.


‘1000 faces of RMS’ is a patient and research resource only and we offer no medical expertise or advice. Nor are we qualified to carry out any validation of the web sites that we link to.

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